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Found 11 result(s)
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The CHILDdb platform provides access to data produced by the CHILD project, a longitudinal birth cohort study of children from pregnancy to 8 years of age, across four Canadian provinces. This study analyzes the participants' home environment including physical, chemical, viral, bacterial, nutritional and psychosocial exposures. This data is expected to further knowledge of the genetic and environmental determinants of atopic diseases including asthma, allergy, allergic rhinitis, and eczema. Researchers can create an account to view meta and aggregate data; access demographic data summaries based on selected variables; and submit a scientific Concept Proposal for approval to access individual-level study data.
Country
Research Data Centre Education is a service offered by the German Institute for International Educational Research, for the purpose of a comprehensive and permanent documentation of empirical educational research studies. This service offers a central access point to describing information on studies, assessment instruments used and assessed research data, as well as publications.
Currently the institute has more than 700 collections consisting of (digital) research data, digitized material, archival collections, printed material, handwritten questionnaires, maps and pictures. The focus is on resources relevant for the study of function, meaning and coherence of cultural expressions and resources relevant for the structural, dialectological and sociolinguistic study of language variation within the Dutch language. An overview is here https://meertens.knaw.nl/en/datasets/
Country
The Research Data Centre of the Robert Koch Institute (FDZ RKI) publishes the data of population-representative health surveys in the form of public use files (PUFs).The main purpose of health surveys is to generate a maximum amount of information on the state of health and health-related behaviour of Germany's resident population while ensuring an optimum use of funds. The methodology - i.e. the sample design, the principles on operationalization and measurement, and data-collection techniques - is largely modelled on the tried-and-tested methods of empirical social research. Health interview surveys (HIS) use established survey techniques such as filling out questionnaires, computer-assisted telephone interviews (CATI), computer-assisted personal interviews (CAPI), and online polling via the internet or email. The main difference compared to purely sociological surveys lies in the additional biomedical examinations, tests and medical-biochemical measurements, which generate significant added value in addition to the results of the surveys; this part is referred to internationally as the health examination survey (HES).
Country
The Research Data Centre Education is a focal point for empirical educational research regarding the archiving and retrieval of audiovisual research data (AV) data and survey instruments (questionnaires and tests). In Research Data Centre Education relevant for empirical educational research data sets and tools for secondary use are provided conform with data protection via a central data repository. Contextual information for each origin study and data and instruments as well as related publications complete the offer. Content of Research Data Centre Education formation (so far) focuses on instruments and data sets of Schulqualitäts- and teaching quality research. Observation and interview data in the form of (anonymous) transcripts and codes - be viewed freely accessible - if any. The release of the original AV data for a scientific re-use is linked to a registration by specifying a reasoned research interest in order to protect the privacy rights of the observed or interviewed people.
ALSPAC is a longitudinal birth cohort study which enrolled pregnant women who were resident in one of three Bristol-based health districts in the former County of Avon with an expected delivery date between 1st April 1991 and 31st December 1992. Around 14,000 pregnant women were initially recruited. Detailed information has been collected on these women, their partners and subsequent children using self-completion questionnaires, data extraction from medical notes, linkage to routine information systems and from hands-on research clinics. Additional cohorts of participants have since been enrolled in their own right including fathers, siblings, children of the children and grandparents of the children. Ethical approval for the study was obtained from the ALSPAC Ethics and Law Committee (IRB00003312) and Local Research Ethics.
Country
The National Data Archive has been disseminating microdata from surveys and censuses primarily under the Ministry of Statistics and Programme Implementation (MoSPI), Government of India. The archive is powered by the National Data Archive (NADA, ver. 4.3) software with DDI Metadata standard. It serves as a portal for researchers to browse, search, and download relevant datasets freely; even with related documentation (viz. survey methodology, sampling procedures, questionnaires, instructions, survey reports, classifications, code directories, etc). A few data files require the user to apply for approval to access with no charge. Currently, the archive holds more than 144 datasets of the National Sample Surveys (NSS), Annual Survey of Industries (ASI), and the Economic Census as available with the Ministry. However, efforts are being made to include metadata of surveys conducted by the State Governments and other government agencies.
The Whitehall II study was established to explore the relationship between socio-economic status, stress and cardiovascular disease. A cohort of 10,308 participants aged 35-55, of whom 3,413 were women and 6,895 men, was recruited from the British Civil Service in 1985. Since this first wave of data collection, self-completion questionnaires and clinical data have been collected from the cohort every two to five years with a high level of participation. Data collection is intended to continue until 2030.
TRAILS is a prospective cohort study, which started in 2001 with population cohort and 2004 with a clinical cohort (CC). Since then, a group of 2500 young people from the Northern part of the Netherlands has been closely monitored in order to chart and explain their mental, physical, and social development. These TRAILS participants have been measured every two to three years, by means of questionnaires, interviews, and all kinds of tests. By now, we have collected information that spans the total period from preadolescence up until young adulthood. One of the main goals of TRAILS is to contribute to the knowledge of the development of emotional and behavioral problems and the (social) functioning of preadolescents into adulthood, their determinants, and underlying mechanisms.
Country
The German Central Health Study Hub is a platform that serves two different kinds of users. First, it allows scientists and data holding organizations (data producers) to publish their project characteristics, documents and data related to their research endeavour in a FAIR manner. Obviously, patient-level data cannot be shared publicly, however, metadata describing the patient-level data along with information about data access can be shared via the platform (preservation description information). The other kind of user is a scientist or researcher (data consumer) that likes to find information about past and ongoing studies and is interested in reusing existing patient-level data for their project. To summarize, the platforms connect data providers with data consumers in the domain of clinical, public health and epidemiologic health research to foster reuse. The platform aggregates and harmonizes information already entered in various public repositories such as DRKS, clinicaltrials.gov, WHO ICTRP to provide a holistic view of the German research landscape in the aforementioned research areas. In addition, data stewards actively collect available information from (public) resources such as websites that cannot be automatically integrated. The service started during the COVID-19 pandemic.