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Found 259 result(s)
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MDM-Portal (Medical Data Models) is a meta-data registry for creating, analyzing, sharing and reusing medical forms. It serves as an infrastructure for academic (non-commercial) medical research to contribute a solution to this problem. It contains forms in the system-independent CDISC Operational Data Model (ODM) format with more than 500,000 data-elements. The Portal provides numerous core data sets, common data elements or data standards, code lists and value sets. This enables researchers to view, discuss, download and export forms in most common technical formats such as PDF, CSV, Excel, SQL, SPSS, R, etc.
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The National Population Health Data Center (NPHDC) is one of the 20 national science data center approved by the Ministry of Science and Technology and the Ministry of Finance. The Population Health Data Archive (PHDA) is developed by NPHDC relying on the Institute of Medical Information, Chinese Academy of Medical Sciences. PHDA mainly receives scientific data from science and technology projects supported by the national budget, and also collects data from other multiple sources such as medical and health institutions, research institutions and social individuals, which is oriented to the national big data strategy and the healthy China strategy. The data resources cover basic medicine, clinical medicine, public health, traditional Chinese medicine and pharmacy, pharmacy, population and reproduction. PHDA supports data collection, archiving, processing, storage, curation, verification, certification and release in the field of population health. Provide multiple types of data sharing and application services for different hierarchy users and help them find, access, interoperate and reuse the data in a safe and controlled environment. PHDA provides important support for promoting the open sharing of scientific data of population health and domestic and foreign cooperation.
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The Infectious Diseases Data Observatory (IDDO) assembles clinical, laboratory and epidemiological data on a collaborative platform to be shared with the research and humanitarian communities. The data are analysed to generate reliable evidence and innovative resources that enable research-driven responses to the major challenges of emerging and neglected infections. Access is available to individual patient data held for malaria and Ebola virus disease. Resources for visceral leishmaniasis, schistosomiasis and soil transmitted helminths, Chagas disease and COVID-19 are under development.
IDDO contains the following repositories : COVID-19 Data Platform, Chagas Data Platform, Schistosomiasis & Soil Transmitted Helminths Data Platform, Visceral Leishmaniasis Data Platform, Ebola Data Platform, WorldWide Antimalarial Resistance Network (WWARN)
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The SICAS Medical Image Repository is a freely accessible repository containing medical research data including medical images, surface models, clinical data, genomics data and statistical shape models. The data can freely be organized and shared on SMIR and made publicly accessible with a DOI. Dedicated data sets are organized as collections of anatomical regions (e.g Cochlea). The data can be filtered using a modular search and accessed on the web or through the SMIR API.
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The Health Atlas is an alliance of medical ontologists, medical systems biologists and clinical trials groups to design and implement a multi-functional and quality-assured atlas. It provides models, data and metadata on specific use cases from medical research projects from the partner institutions.
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The Evidence-based Practice Center (EPC) at Tufts Medical Center, with support from the Agency for Healthcare Research and Quality (AHRQ), has developed the Systematic Review Data Repository (SRDR), which is a Web-based tool for data extraction and storage of systematic review data. Potential users include patients, policy makers/stakeholders, independent researchers, research centers, and funders of research.
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MIDRC aims to develop a high-quality repository for medical images related to COVID-19 and associated clinical data, and develop and foster medical image-based artificial intelligence (AI) for use in the detection, diagnosis, prognosis, and monitoring of COVID-19.
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BioLINCC is the Biologic Specimen and Data Repository Coordinating Center. The center coordinates data and biospecimens from NHLBI-funded studies that are available for use in other approved studies. The center also creates teaching data sets from NHLBI-funded studies for use in training future biostatisticians.
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The COVID-19 Data Portal was launched in April 2020 to bring together relevant datasets for sharing and analysis in an effort to accelerate coronavirus research. It enables researchers to upload, access and analyse COVID-19 related reference data and specialist datasets as part of the wider European COVID-19 Data Platform.
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The data.bris Research Data Repository is an online digital repository of multi-disciplinary research datasets produced at the University of Bristol.
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STOREDB is a platform for the archiving and sharing of primary data and outputs of all kinds, including epidemiological and experimental data, from research on the effects of radiation. It also provides a directory of bioresources and databases containing information and materials that investigators are willing to share. STORE supports the creation of a radiation research commons.
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The UMIN case data repository system was implemented by adding a function to the UMIN Clinical Trials Registry System. The aim of this system is to keep anonymized case data from clinical research conducted by individual researchers at the UMIN center, and to guarantee the content of the data to third parties. This system enables other researchers to inspect case data or to repeat statistical analyses
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Modern signal processing and machine learning methods have exciting potential to generate new knowledge that will impact both physiological understanding and clinical care. Access to data - particularly detailed clinical data - is often a bottleneck to progress. The overarching goal of PhysioNet is to accelerate research progress by freely providing rich archives of clinical and physiological data for analysis.
The PhysioNet resource has three closely interdependent components: An extensive archive ("PhysioBank"), a large and growing library of software ("PhysioToolkit"), and a collection of popular tutorials and educational materials
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A domain-specific repository for the Life Sciences, covering the health, medical as well as the green life sciences. The repository services are primarily aimed at the Netherlands, but not exclusively.
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SAGE is a data and research platform that enables the secondary use of data related to child and youth development, health and well-being. It currently contains research data, and at a later stage we aim to also house administrative and community service delivery data. Technical infrastructure and governance processes are in place to ensure ethical use and the privacy of participants.
This dataverse provides metadata for the various data holdings available in SAGE (Secondary Analysis to Generate Evidence), a research data repository based in Edmonton Alberta and an intiative of PolicyWise for Children & Families. In general, SAGE contains data holdings too sensitive for open access. Each study lists a security level which indicates the procedure required to access the data.
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NODE (The National Omics Data Encyclopedia) provides an integrated, compatible, comparable, and scalable multi-omics resource platform that supports flexible data management and effective data release. NODE uses a hierarchical data architecture to support storage of muti-omics data including sequencing data, MS based proteomics data, MS or NMR based metabolomics data, and fluorescence imaging data.
Launched in early 2017, NODE has collected and published over 900 terabytes of omics data for researchers from China and all over the world in last three years, 22% of which contains multiple omics data. NODE provides functions around the whole life cycle of omics data, from data archive, data requests/responses to data sharing, data analysis, data review and publish.
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<<<!!!<<< Genome data generated by BC Genome Sciences Centre is no longer available through this site as it is regularly deposited into controlled data repositories such as the European Genome Phenome Archive (EGA); ICGC (International Cancer Genome Consortium) and the Genome Data Commons (GDC) >>>!!!>>>
Mapping, copy number analysis, sequence and gene expression data generated by the High Resolution Analysis of Follicular Lymphoma Genomes project. The data will be available for 24 patients with follicular lymphoma. All data will be made as widely and freely available as possible while safeguarding the privacy of participants, and protecting confidential and proprietary data.The data from this project will be submitted to public genomic data sources. These sources will be listed on this web site as the data becomes available in these external data sources.
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The National Trauma Data Bank® (NTDB) is the largest aggregation of trauma registry data ever assembled. The goal of the NTDB is to inform the medical community, the public, and decision makers about a wide variety of issues that characterize the current state of care for injured persons. Registry data that is collected from the NTDB is compiled annually and disseminated in the forms of hospital benchmark reports, data quality reports, and research data sets. Research data sets that can be used by researchers. To gain access to NTDB data, researchers must submit requests through our online application process
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British Antarctic Survey (BAS) has, for over 60 years, undertaken the majority of Britain's scientific research on and around the Antarctic continent. Atmospheric, biosphere, cryosphere, geosphere, hydrosphere, and Sun-Earth interactions metadata and data are available. Geographic information and collections are highlighted as well. Information and mapping services include a Discovery Metadata System, Data Access System, the Antarctic Digital Database (ADD), Geophysics Data Portal (BAS-GDP), ICEMAR, a fossil database, and the Antarctic Plant Database.
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The CancerData site is an effort of the Medical Informatics and Knowledge Engineering team (MIKE for short) of Maastro Clinic, Maastricht, The Netherlands. Our activities in the field of medical image analysis and data modelling are visible in a number of projects we are running. CancerData is offering several datasets. They are grouped in collections and can be public or private. You can search for public datasets in the NBIA (National Biomedical Imaging Archive) image archives without logging in.
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Open access to macromolecular X-ray diffraction and MicroED datasets. The repository complements the Worldwide Protein Data Bank. SBDG also hosts reference collection of biomedical datasets contributed by members of SBGrid, Harvard and pilot communities.
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<<<!!!<<< This repository is no longer available. >>>!!!>>>
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Goal of the RDC at ZPID is the documentation and long-term archiving of research data from all areas of psychology and the social sciences in accordance with the FAIR principles, using specially created metadata and to provide use of the data for scientific purposes such as secondary analysis and reanalysis. The RDC at ZPID contains all areas of psychology, in particular data sets from clinical, developmental, educational, gero-, and work and organizational psychology stemming from longitudinal studies, major surveys, and test development.
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The FREEBIRD website aims to facilitate data sharing in the area of injury and emergency research in a timely and responsible manner. It has been launched by providing open access to anonymised data on over 30,000 injured patients (the CRASH-1 and CRASH-2 trials).
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An online data management workbench and computing service provider for biology and related disciplines.
- Current projects
- EOSC FAIR-IMPACT
- re3data COREF
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To the extent possible under law,
re3data.org
has waived all copyright and related or neighboring rights to
the database entries of re3data.org.
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Except where otherwise noted, content on this site is licensed under a
Creative Commons Attribution 4.0 International License
.
- Cite this service: re3data.org - Registry of Research Data Repositories. https://doi.org/10.17616/R3D last accessed: 2024-05-17
