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Found 155 result(s)
THIN is a medical data collection scheme that collects anonymised patient data from its members through the healthcare software Vision. The UK Primary Care database contains longitudinal patient records for approximately 6% of the UK Population. The anonymised data collection, which goes back to 1994, is nationally representative of the UK population.
The Malaria Atlas Project (MAP) brings together researchers based around the world with expertise in a wide range of disciplines from public health to mathematics, geography and epidemiology. We work together to generate new and innovative methods of mapping malaria risk. Ultimately our goal is to produce a comprehensive range of maps and estimates that will support effective planning of malaria control at national and international scales.
A collection of data at Agency for Healthcare Research and Quality (AHRQ) supporting research that helps people make more informed decisions and improves the quality of health care services. The portal contains U.S.Health Information Knowledgebase (USHIK) and Systematic Review Data Repository (SRDR) and other sources concerning cost, quality, accesibility and evaluation of healthcare and medical insurance.
Country
The Trøndelag Health Study (The HUNT Study) is one of the largest health studies ever performed. It is a unique database of questionnaire data, clinical measurements and samples from a county’s inhabitants from 1984 onwards. The HUNT Study is well-known in the county of Trøndelag, and its inhabitants have a generally positive attitude to participation and health research resulting from the study. HUNT has high participation rates, providing a good base for further health surveys in the county and an excellent research environment. Today, HUNT Research Centre has a database with information on 230,000 people. Approximately 300 national and international research projects are currently using the samples and data from HUNTs collection.
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A small genotype data repository containing data used in recent papers from the Estonian Biocentre. Most of the data pertains to human population genetics. PDF files of the papers are also freely available.
International Research Institute for Climate and Society (IRI) research focuses on climate, environmental monitoring, agriculture, health, water, and economic sectors in Africa, Asia and Pacific, and Latin America and Caribbean. The IRI data library is a freely accessible data repository and analysis tool. IRI allows users to view, manipulate, and download climate-related data sets through a standard web browser.
Country
Research Data Centres offer a secure access to detailed microdata from Statistics Canada's surveys, and to Canadian censuses' data, as well as to an increasing number of administrative data sets. The search engine was designed to help you find out more easily which dataset among all the surveys available in the RDCs best suits your research needs.
Modern signal processing and machine learning methods have exciting potential to generate new knowledge that will impact both physiological understanding and clinical care. Access to data - particularly detailed clinical data - is often a bottleneck to progress. The overarching goal of PhysioNet is to accelerate research progress by freely providing rich archives of clinical and physiological data for analysis. The PhysioNet resource has three closely interdependent components: An extensive archive ("PhysioBank"), a large and growing library of software ("PhysioToolkit"), and a collection of popular tutorials and educational materials
PhysioBank is a large and growing archive of well-characterized digital recordings of physiologic signals and related data for use by the biomedical research community.
TRAILS is a prospective cohort study, which started in 2001 with population cohort and 2004 with a clinical cohort (CC). Since then, a group of 2500 young people from the Northern part of the Netherlands has been closely monitored in order to chart and explain their mental, physical, and social development. These TRAILS participants have been measured every two to three years, by means of questionnaires, interviews, and all kinds of tests. By now, we have collected information that spans the total period from preadolescence up until young adulthood. One of the main goals of TRAILS is to contribute to the knowledge of the development of emotional and behavioral problems and the (social) functioning of preadolescents into adulthood, their determinants, and underlying mechanisms.
Country
From April 2020 to March 2023, the Covid-19 Immunity Task Force (CITF) supported 120 studies to generate knowledge about immunity to SARS-CoV-2. The subjects addressed by these studies include the extent of SARS-CoV-2 infection in Canada, the nature of immunity, vaccine effectiveness and safety, and the need for booster shots among different communities and priority populations in Canada. The CITF Databank was developed to further enhance the impact of CITF funded studies by allowing additional research using the data collected from CITF-supported studies. The CITF Databank centralizes and harmonizes individual-level data from CITF-funded studies that have met all ethical requirements to deposit data in the CITF Databank and have completed a data sharing agreement. The CITF Databank is an internationally unique resource for sharing epidemiological and laboratory data from studies about SARS-CoV-2 immunity in different populations. The types of research that are possible with data from the CITF Databank include observational epidemiological studies, mathematical modelling research, and comparative evaluation of surveillance and laboratory methods.
Country
SAGE is a data and research platform that enables the secondary use of data related to child and youth development, health and well-being. It currently contains research data, and at a later stage we aim to also house administrative and community service delivery data. Technical infrastructure and governance processes are in place to ensure ethical use and the privacy of participants. This dataverse provides metadata for the various data holdings available in SAGE (Secondary Analysis to Generate Evidence), a research data repository based in Edmonton Alberta and an intiative of PolicyWise for Children & Families. In general, SAGE contains data holdings too sensitive for open access. Each study lists a security level which indicates the procedure required to access the data.
FORS is the Swiss Centre of Expertise in the Social Sciences. FORS maintains a national digital archive for social science research data, implements large-scale national and international surveys, offers data and research information services to researchers and academic institutions, and conducts methodological and thematic research. FORS Data Service is FORS’ resource centre for research and teaching in the social sciences. It provides data management support and training, and it archives, disseminates and promotes quantitative and qualitative data. The Data Service maintains a comprehensive and up-to-date inventory of social science research projects in Switzerland, and makes available a wide range of datasets for secondary analysis. Databases at the FORS Data Service are: SWISSUbase and DeVisu (for variable level metadata for important surveys).
<<<!!!<<< The repository is no longer available - Data previously on the site are now available at ftp://ftp.ncbi.nlm.nih.gov/pub/mhc/mhc/Final Archive. >>>!!!>>> The dbMHC database provides an open, publicly accessible platform for DNA and clinical data related to the human Major Histocompatibility Complex (MHC). The dbMHC provides access to human leukocyte antigen (HLA) sequences, HLA allele and haplotype frequencies, and clinical datasets.
This site is dedicated to making high value health data more accessible to entrepreneurs, researchers, and policy makers in the hopes of better health outcomes for all. In a recent article, Todd Park, United States Chief Technology Officer, captured the essence of what the Health Data Initiative is all about and why our efforts here are so important.
Patients-derived tumor xenograft (PDX) mouse models are an important oncology research platform to study tumor evolution, drug response and personalised medicine approaches. We have expanded to organoids and cell lines and are now called CancerModels.Org
PSI is a global health organization dedicated to improving the health of people in the developing world by focusing on serious challenges like a lack of family planning, HIV and AIDS, barriers to maternal health, and the greatest threats to children under five, including malaria, diarrhea, pneumonia and malnutrition. A hallmark of PSI is a commitment to the principle that health services and products are most effective when they are accompanied by robust communications and distribution efforts that help ensure wide acceptance and proper use. PSI works in partnership with local governments, ministries of health and local organizations to create health solutions that are built to last. We use original data to monitor and evaluate our programs, generate consumer insight, estimate the impact of our solutions, and evaluate the health of the markets we work to strengthen.
The Social Science Data Archive is still active and maintained as part of the UCLA Library Data Science Center. SSDA Dataverse is one of the archiving opportunities of SSDA, the others are: Data can be archived by SSDA itself or by ICPSR or by UCLA Library or by California Digital Library. The Social Science Data Archives serves the UCLA campus as an archive of faculty and graduate student survey research. We provide long term storage of data files and documentation. We ensure that the data are useable in the future by migrating files to new operating systems. We follow government standards and archival best practices. The mission of the Social Science Data Archive has been and continues to be to provide a foundation for social science research with faculty support throughout an entire research project involving original data collection or the reuse of publicly available studies. Data Archive staff and researchers work as partners throughout all stages of the research process, beginning when a hypothesis or area of study is being developed, during grant and funding activities, while data collection and/or analysis is ongoing, and finally in long term preservation of research results. Our role is to provide a collaborative environment where the focus is on understanding the nature and scope of research approach and management of research output throughout the entire life cycle of the project. Instructional support, especially support that links research with instruction is also a mainstay of operations.