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Human biomaterial banks (short: biobanks) are collections of human body substances (i.e. blood, DNA, urine or tissue) connected with disease specific information. This allow for research of relations between deseases and underlying (molecular) modifications and paves the way for developing target-oriented therapies ("personalized medicine"). The biobank material arises from samples taken for therapeutical or diagnostic reasons or is extracted in the context of clinical trials. An approval for usage by the patient is always needed prior to any research activities.
The UC San Diego Library Digital Collections website gathers two categories of content managed by the Library: library collections (including digitized versions of selected collections covering topics such as art, film, music, history and anthropology) and research data collections (including research data generated by UC San Diego researchers).
All ADNI data are shared without embargo through the LONI Image and Data Archive (IDA), a secure research data repository. Interested scientists may obtain access to ADNI imaging, clinical, genomic, and biomarker data for the purposes of scientific investigation, teaching, or planning clinical research studies. "The Alzheimer’s Disease Neuroimaging Initiative (ADNI) unites researchers with study data as they work to define the progression of Alzheimer’s disease (AD). ADNI researchers collect, validate and utilize data, including MRI and PET images, genetics, cognitive tests, CSF and blood biomarkers as predictors of the disease. Study resources and data from the North American ADNI study are available through this website, including Alzheimer’s disease patients, mild cognitive impairment subjects, and elderly controls. "
META-SHARE, the open language resource exchange facility, is devoted to the sustainable sharing and dissemination of language resources (LRs) and aims at increasing access to such resources in a global scale. META-SHARE is an open, integrated, secure and interoperable sharing and exchange facility for LRs (datasets and tools) for the Human Language Technologies domain and other applicative domains where language plays a critical role. META-SHARE is implemented in the framework of the META-NET Network of Excellence. It is designed as a network of distributed repositories of LRs, including language data and basic language processing tools (e.g., morphological analysers, PoS taggers, speech recognisers, etc.). Data and tools can be both open and with restricted access rights, free and for-a-fee.
The Extreme Light Infrastructure (ELI) is the world's most advanced laser-based research infrastructure. The ELI Facilities provide access to a broad range of world-class high-power, high repetition-rate laser systems and secondary sources. This enables cutting-edge research and new regimes of high intensity physics in physical, chemical, medical, and materials sciences.
CLOSER Discovery is a research tool for locating the variables that best suit your research interests and testing their robustness. Metadata repository for Longitudinal Population Studies in the United Kingdom
Within WASCAL a large number of heterogeneous data are collected. These data are mainly coming from different initiated research activities within WASCAL (Core Research Program, Graduate School Program) from the hydrological-meteorological, remote sensing, biodiversity and socio economic observation networks within WASCAL, and from the activities of the WASCAL Competence Center in Ouagadougou, Burkina-Faso.
The Stanford Digital Repository (SDR) is Stanford Libraries' digital preservation system. The core repository provides “back-office” preservation services – data replication, auditing, media migration, and retrieval -- in a secure, sustainable, scalable stewardship environment. Scholars and researchers across disciplines at Stanford use SDR repository services to provide ongoing, persistent, reliable access to their research outputs.
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Fairdata IDA is a research data storage service that provides secure storage for research data. The Fairdata services are a group of nationally developed Finnish ICT services for managing research data, especially in the later phases of the research life cycle (sharing, publishing, and preserving). Development of research data management infrastructure has been identified as an important step in enabling implementation of the FAIR principles. The Fairdata services are funded by the Finnish Ministry of Education and Culture, and developed and maintained by CSC IT Center for Science. The services consist of the following service components: IDA – Research Data Storage; Etsin – Research Data Finder; Qvain – Research Dataset Metadata Tool; Metax – Metadata Warehouse; AVAA – Dynamic Data Publishing Platform and the Digital Preservation Service for Research Data (including management and packaging). The services also provide means for applying for and granting permits to use restricted access datasets. The service is offered free of charge for its users. The services are available to the research community in accordance with the applicable usage policy. Minedu offers access to research data storage service IDA to Finnish higher education institutions, state research institutes and projects funded by the Academy of Finland. Minedu may also grant separate access or storage capacity to the service. Finnish higher education institutions and research institutes may distribute IDA storage capacity to actors within the Finnish research system, within the limits of their usage shares. The service is intended for storing research data and materials related to it. The data stored in the service is available to all project users. The users mark their data to be persistently stored (“Frozen”) in the service. All project members may make the “Frozen” data and related metadata publicly accessible by using the other aforementioned Fairdata services. The data in the service is stored in Finland. IDA service stores the data stored by organisations projects continuously or until it’s transferred to digital preservation, provided that the Terms of Use are met. The owners of the data decide on the openness and usage policies for their own data. User organisations are offered support and guidance on using the service.