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Found 25 result(s)
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Human biomaterial banks (short: biobanks) are collections of human body substances (i.e. blood, DNA, urine or tissue) connected with disease specific information. This allow for research of relations between deseases and underlying (molecular) modifications and paves the way for developing target-oriented therapies ("personalized medicine"). The biobank material arises from samples taken for therapeutical or diagnostic reasons or is extracted in the context of clinical trials. An approval for usage by the patient is always needed prior to any research activities.
BSRN is a project of the Radiation Panel (now the Data and Assessment Panel) from the Global Energy and Water Cycle Experiment (GEWEX) under the umbrella of the World Climate Research Programme (WCRP). It is the global baseline network for surface radiation for the Global limate Observing System (GCOS), contributing to the Global Atmospheric Watch (GAW), and forming a ooperative network with the Network for the Detection of Atmospheric Composition Change NDACC).
The nationally recognized National Cancer Database (NCDB)—jointly sponsored by the American College of Surgeons and the American Cancer Society—is a clinical oncology database sourced from hospital registry data that are collected in more than 1,500 Commission on Cancer (CoC)-accredited facilities. NCDB data are used to analyze and track patients with malignant neoplastic diseases, their treatments, and outcomes. Data represent more than 70 percent of newly diagnosed cancer cases nationwide and more than 34 million historical records.
The data in the U of M’s Clinical Data Repository comes from the electronic health records (EHRs) of more than 2 million patients seen at 8 hospitals and more than 40 clinics. For each patient, data is available regarding the patient's demographics (age, gender, language, etc.), medical history, problem list, allergies, immunizations, outpatient vitals, diagnoses, procedures, medications, lab tests, visit locations, providers, provider specialties, and more.
The PAIN Repository is a recently funded NIH initiative, which has two components: an archive for already collected imaging data (Archived Repository), and a repository for structural and functional brain images and metadata acquired prospectively using standardized acquisition parameters (Standardized Repository) in healthy control subjects and patients with different types of chronic pain. The PAIN Repository provides the infrastructure for storage of standardized resting state functional, diffusion tensor imaging and structural brain imaging data and associated biological, physiological and behavioral metadata from multiple scanning sites, and provides tools to facilitate analysis of the resulting comprehensive data sets.
The UC San Diego Library Digital Collections website gathers two categories of content managed by the Library: library collections (including digitized versions of selected collections covering topics such as art, film, music, history and anthropology) and research data collections (including research data generated by UC San Diego researchers).
The Archaeological Map of the Czech Republic (AMCR) is a repository designed for information on archaeological investigations, sites and finds, operated by the Archaeological Institutes of the CAS in Prague and Brno. The archives of these institutions contain documentation of archaeological fieldwork on the territory of the Czech Republic from 1919 to the present day, and they continue to enrich their collections. The AMCR database and related documents form the largest collection of archaeological data concerning the Czech Republic and are therefore an important part of our cultural heritage. The AMCR digital archive contains various types of records - individual archaeological documents (texts, field photographs, aerial photographs, maps and plans, digital data), projects, fieldwork events, archaeological sites, records of individual finds and a library of 3D models. Data and descriptive information are continuously taken from the AMCR and presented in the the AMCR Digital Archive interface.
US National Science Foundation (NSF) facility to support drilling and coring in continental locations worldwide. Drill core metadata and data, borehole survey data, geophysical site survey data, drilling metadata, software code. The CSD Facility offers repositories with samples, data, publications and reference collections from scientific drilling and coring.
The WashU Research Data repository accepts any publishable research data set, including textual, tabular, geospatial, imagery, computer code, or 3D data files, from researchers affiliated with Washington University in St. Louis. Datasets include metadata and are curated and assigned a DOI to align with FAIR data principles.
The Odum Institute Archive Dataverse contains social science data curated and archived by the Odum Institute Data Archive at the University of North Carolina at Chapel Hill. Some key collections include the primary holdings of the Louis Harris Data Center, the National Network of State Polls, and other Southern-focused public opinion data. Please note that some datasets in this collection are restricted to University of North Carolina at Chapel Hill affiliates. Access to these datasets require UNC ONYEN institutional login to the Dataverse system.
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Borealis, the Canadian Dataverse Repository, is a bilingual, multidisciplinary, secure, Canadian research data repository, supported by academic libraries and research institutions across Canada. Borealis supports open discovery, management, sharing, and preservation of Canadian research data. Borealis is available to researchers who are affiliated with a participating Canadian university or research organization and their collaborators. Borealis is a shared service provided in partnership with Canadian regional academic library consortia, institutions, research organizations, and the Digital Research Alliance of Canada, with technical infrastructure hosted by Scholars Portal and the University of Toronto Libraries.
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DaRUS, the data repository of the University of Stuttgart, offers a secure location for research data and codes, be it for the administration of own data, for exchange within a research group, for sharing with selected partners or for publishing.
The Avian Knowledge Network (AKN) is an international network of governmental and non-governmental institutions and individuals linking avian conservation, monitoring and science through efficient data management and coordinated development of useful solutions using best-science practices based on the data.
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MIDAS is a national research data repository. The aim of MIDAS is to collect, process, store and analyse research data and other relevant information in all fields of knowledge, enabling free, easy and convenient access to the data via the Internet. MIDAS provides services for registered and unregistered users: students, listeners, academics, researchers, scientists, research administrators, other actors of the research and studies ecosystem, and all individuals interested in research data. MIDAS consists of the MIDAS portal and MIDAS user account. The MIDAS portal is a public space accessible to anyone interested in discovering and viewing published research Data and their metadata, whereas MIDAS user account is available to registered users only. MIDAS is managed by Vilnius University.
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This guide aims to provide a starting point to locating Geographic Information System (GIS) information both through the University of Sydney library catalogue and on the World Wide Web.
The main objective of the project is to digitize the data collected by the Maritime Administration and make it available for reuse by digitizing analog resources, integrating and harmonizing data and building a digital repository, and disseminating information about the resources collected in the system. The aim of the project is to make maritime administration data sets available on the Internet.
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Adattár stores research data associated with the University of Debrecen, and provides services such as data transfer, storage and sharing. As a result, research data is easily accessible and more visible to the scientific community in each field, following disciplinary standards. Adattár aims to foster best practices of findability and accessibility of research data, and will provide guidance regarding issues of access, privacy, and copyright. Adattár aims to be a widely used, inter-disciplinary, trusted platform for managing, sharing, and archiving research data created by the researchers associated with the university.
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The National Forest Inventory (NFI) is a collaborative effort involving federal, provincial and territorial government agencies. They monitor a network of twenty thousand sampling points across Canada on an ongoing basis to provide information on the state of Canada's forests and a continuous record of forest change. They provide data and products to forest science researchers, forest policy decision-makers and interested stakeholders.
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Portal Zarządzania Wiedzą UJ CM is a knowledge and research potential management platform of medical information. Easy data localization will be possible thanks to DOI and URL addresses given by administrators of the Knowledge Management Platform JU MC. The data will be stored in 2 copies for 10 years.
The ODIN Portal hosts scientific databases in the domains of structural materials and hydrogen research and is operated on behalf of the European energy research community by the Joint Research Centre, the European Commission's in-house science service providing independent scientific advice and support to policies of the European Union. ODIN contains engineering databases (Mat-Database, Hiad-Database, Nesshy-Database, HTR-Fuel-Database, HTR-Graphit-Database) and document management sites and other information related to European research in the area of nuclear and conventional energy.
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FinBIF is an integral part of the global biodiversity informatics framework, dedicated to managing species information. Its mission encompasses a wide array of services, including the generation of digital data through various processes, as well as the sourcing, collation, integration, and distribution of existing digital data. Key initiatives under FinBIF include the digitization of collections, the development of data systems for collections Kotka (https://biss.pensoft.net/article/37179/) and observations (https://biss.pensoft.net/article/39150/), and the establishment of a national DNA barcode reference library. FinBIF manages data types such as verbal species descriptions (which include drawings, pictures, and other media types), biological taxonomy, scientific collection specimens, opportunistic systematic and event-based observations, and DNA barcodes. It employs a unified IT architecture to manage data flows, delivers services through a single online portal, fosters collaboration under a cohesive umbrella concept, and articulates development visions under a unified brand. The portal Laji.fi serves as the entry point to this harmonized open data ecosystem. FinBIF's portal is accessible in Finnish, Swedish, and English. Data intended for restricted use are made available to authorities through a separate portal, while open data are also shared with international systems, such as GBIF.
SimTK is a free project-hosting platform for the biomedical computation community that enables researchers to easily share their software, data, and models and provides the infrastructure so they can support and grow a community around their projects. It has over 126.656 members, hosts 1.648 projects from researchers around the world, and has had more than 2.095.783 files downloaded from it. Individuals have created SimTK projects to meet publisher and funding agencies’ software and data sharing requirements, run scientific challenges, create a collection of their community’s resources, and much more.
The Stanford Digital Repository (SDR) is Stanford Libraries' digital preservation system. The core repository provides “back-office” preservation services – data replication, auditing, media migration, and retrieval -- in a secure, sustainable, scalable stewardship environment. Scholars and researchers across disciplines at Stanford use SDR repository services to provide ongoing, persistent, reliable access to their research outputs.