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SAGE is a data and research platform that enables the secondary use of data related to child and youth development, health and well-being. It currently contains research data, and at a later stage we aim to also house administrative and community service delivery data. Technical infrastructure and governance processes are in place to ensure ethical use and the privacy of participants. This dataverse provides metadata for the various data holdings available in SAGE (Secondary Analysis to Generate Evidence), a research data repository based in Edmonton Alberta and an intiative of PolicyWise for Children & Families. In general, SAGE contains data holdings too sensitive for open access. Each study lists a security level which indicates the procedure required to access the data.
SWISSUbase is a national cross-disciplinary solution for Swiss universities and other research organisations in need of local institutional data repositories for their researchers. SWISSUbase offers to the Swiss research institutions a tool for the curation, preservation, and dissemination of scientific research data and for the storage of information on ongoing and completed research projects in the country. The platform relies on international archiving standards and processes to ensure that data are preserved and accessible in the long-term. Datasets are curated by Data Service Units (DSU). DSU LaRS – Language Repository of Switzerland: https://www.lars.uzh.ch/en.html
The NF Data Portal is designed to help openly explore and share NF datasets, analysis tools, resources, and publications related to neurofibromatosis. Anyone can join the NF Open Science Initiative (NF-OSI) to participate! We welcome contributions from anyone in the neurofibromatosis and schwannomatosis research community, such as original datasets generated by the community or analyses of data from the NF Data Portal.