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Found 24 result(s)
The Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) Data and Specimen Hub (DASH) is a centralized resource that allows researchers to share and access de-identified data from studies funded by NICHD. DASH also serves as a portal for requesting biospecimens from selected DASH studies.
Country
DAIS - Digital Archive of the Serbian Academy of Sciences and Arts is a joint digital repository of the Serbian Academy of Sciences and Arts (SASA) and the research institutes under the auspices of SASA. The aim of the repository is to provide open access to publications and other research outputs resulting from the projects implemented by the SASA and its institutes. The repository uses a DSpace-based software platform developed and maintained by the Belgrade University Computer Centre (RCUB).
The Common Cold Project began in 2011 with the aim of creating, documenting, and archiving a database that combines final research data from 5 prospective viral-challenge studies that were conducted over the preceding 25 years: the British Cold Study (BCS); the three Pittsburgh Cold Studies (PCS1, PCS2, and PCS3); and the Pittsburgh Mind-Body Center Cold Study (PMBC). These unique studies assessed predictor (and hypothesized mediating) variables in healthy adults aged 18 to 55 years, experimentally exposed them to a virus that causes the common cold, and then monitored them for development of infection and signs and symptoms of illness.
THIN is a medical data collection scheme that collects anonymised patient data from its members through the healthcare software Vision. The UK Primary Care database contains longitudinal patient records for approximately 6% of the UK Population. The anonymised data collection, which goes back to 1994, is nationally representative of the UK population.
The European Prospective Investigation into Cancer and Nutrition (EPIC) study is one of the largest cohort studies in the world, with more than half a million (521 000) participants recruited across 10 European countries and followed for almost 15 years. EPIC was designed to investigate the relationships between diet, nutritional status, lifestyle and environmental factors, and the incidence of cancer and other chronic diseases. EPIC investigators are active in all fields of epidemiology, and important contributions have been made in nutritional epidemiology using biomarker analysis and questionnaire information, as well as genetic and lifestyle investigations.
PSI is a global health organization dedicated to improving the health of people in the developing world by focusing on serious challenges like a lack of family planning, HIV and AIDS, barriers to maternal health, and the greatest threats to children under five, including malaria, diarrhea, pneumonia and malnutrition. A hallmark of PSI is a commitment to the principle that health services and products are most effective when they are accompanied by robust communications and distribution efforts that help ensure wide acceptance and proper use. PSI works in partnership with local governments, ministries of health and local organizations to create health solutions that are built to last. We use original data to monitor and evaluate our programs, generate consumer insight, estimate the impact of our solutions, and evaluate the health of the markets we work to strengthen.
The CDHA assists researchers to create, document, and distribute public use microdata on health and aging for secondary analysis. Major research themes include: midlife development and aging; economics of population aging; inequalities in health and aging; international comparative studies of health and aging; and the investigation of linkages between social-demographic and biomedical research in population aging. The CDHA is one of fourteen demography centers on aging sponsored by the National Institute on Aging.
The Pacific Islands Families (PIF) Study is an ongoing longitudinal birth cohort study that has been tracking the health and development of 1,398 Pacific children and their parents since the children were born at Middlemore Hospital in South Auckland in the year 2000. It is the only prospective study specifically of Pacific peoples in the world.
The Humanitarian Data Exchange (HDX) is an open platform for sharing data across crises and organisations. Launched in July 2014, the goal of HDX is to make humanitarian data easy to find and use for analysis. HDX is managed by OCHA's Centre for Humanitarian Data, which is located in The Hague. OCHA is part of the United Nations Secretariat and is responsible for bringing together humanitarian actors to ensure a coherent response to emergencies. The HDX team includes OCHA staff and a number of consultants who are based in North America, Europe and Africa.
FORS is the Swiss Centre of Expertise in the Social Sciences. FORS maintains a national digital archive for social science research data, implements large-scale national and international surveys, offers data and research information services to researchers and academic institutions, and conducts methodological and thematic research. FORS Data Service is FORS’ resource centre for research and teaching in the social sciences. It provides data management support and training, and it archives, disseminates and promotes quantitative and qualitative data. The Data Service maintains a comprehensive and up-to-date inventory of social science research projects in Switzerland, and makes available a wide range of datasets for secondary analysis. Databases at the FORS Data Service are: SWISSUbase and DeVisu (for variable level metadata for important surveys).
The Population Research in Sexual Minority Health (PRISM) Data Archive is a collaborative project of the Center for Population Research in LGBT Health and the Inter-university Consortium for Political and Social Research (ICPSR). The PRISM data archive project is a primary initiative of the Center. PRISM makes high quality datasets useful for analysis of issues affecting sexual and gender minority populations in the United States available researchers, scholars, educators and practitioners.
The National Collaborative on Childhood Obesity Research (NCCOR) brings together four of the nation's leading research funders — the Centers for Disease Control and Prevention (CDC), the National Institutes of Health (NIH), the Robert Wood Johnson Foundation (RWJF), and the U.S. Department of Agriculture (USDA) — to address the problem of childhood obesity in America. The Tools of the NCCOR are: Catalogue of Surveillance Systems, Measures Registry and Registry of Studies.
The Human Mortality Database (HMD) was created to provide detailed mortality and population data to researchers, students, journalists, policy analysts, and others interested in the history of human longevity. The Human Mortality Database (HMD) contains original calculations of death rates and life tables for national populations (countries or areas), as well as the input data used in constructing those tables. The input data consist of death counts from vital statistics, plus census counts, birth counts, and population estimates from various sources.
The Health and Medical Care Archive (HMCA) is the data archive of the Robert Wood Johnson Foundation (RWJF), the largest philanthropy devoted exclusively to health and health care in the United States. Operated by the Inter-university Consortium for Political and Social Research (ICPSR) at the University of Michigan, HMCA preserves and disseminates data collected by selected research projects funded by the Foundation and facilitates secondary analyses of the data. Our goal is to increase understanding of health and health care in the United States through secondary analysis of RWJF-supported data collections
Country
The Trøndelag Health Study (The HUNT Study) is one of the largest health studies ever performed. It is a unique database of questionnaire data, clinical measurements and samples from a county’s inhabitants from 1984 onwards. The HUNT Study is well-known in the county of Trøndelag, and its inhabitants have a generally positive attitude to participation and health research resulting from the study. HUNT has high participation rates, providing a good base for further health surveys in the county and an excellent research environment. Today, HUNT Research Centre has a database with information on 230,000 people. Approximately 300 national and international research projects are currently using the samples and data from HUNTs collection.
NAHDAP acquires, preserves and disseminates data relevant to drug addiction and HIV research. By preserving and making available an easily accessible library of electronic data on drug addiction and HIV infection in the United States, NAHDAP offers scholars the opportunity to conduct secondary analysis on major issues of social and behavioral sciences and public policy
The Social Science Data Archive is still active and maintained as part of the UCLA Library Data Science Center. SSDA Dataverse is one of the archiving opportunities of SSDA, the others are: Data can be archived by SSDA itself or by ICPSR or by UCLA Library or by California Digital Library. The Social Science Data Archives serves the UCLA campus as an archive of faculty and graduate student survey research. We provide long term storage of data files and documentation. We ensure that the data are useable in the future by migrating files to new operating systems. We follow government standards and archival best practices. The mission of the Social Science Data Archive has been and continues to be to provide a foundation for social science research with faculty support throughout an entire research project involving original data collection or the reuse of publicly available studies. Data Archive staff and researchers work as partners throughout all stages of the research process, beginning when a hypothesis or area of study is being developed, during grant and funding activities, while data collection and/or analysis is ongoing, and finally in long term preservation of research results. Our role is to provide a collaborative environment where the focus is on understanding the nature and scope of research approach and management of research output throughout the entire life cycle of the project. Instructional support, especially support that links research with instruction is also a mainstay of operations.