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Found 90 result(s)

Canadian Institute for Health Information Repository

CIHI's Repository

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The Canadian Institute for Health Information (CIHI) provides comparable and actionable data and information that are used to accelerate improvements in health care, health system performance and population health across Canada.

Global Health Data Exchange

GHDx

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The GHDx is our user-friendly and searchable data catalog for global health, demographic, and other health-related datasets. It provides detailed information about datasets ranging from censuses and surveys to health records and vital statistics, globally. It also serves as a platform for data owners to share their data with the public. The GDB Compare visualization, which allows the user to see rate of change in disease incidence, globally or by country, by age or across all ages, is especially powerful as a tool. Be sure to try adding a bottom chart, like the map, to augment the treemap that loads by default in the top chart.

The National Practitioner Data Bank

NPDB

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The National Practitioner Data Bank (NPDB), or "the Data Bank," is a confidential information clearinghouse created by Congress with the primary goals of improving health care quality, protecting the public, and reducing health care fraud and abuse in the U.S.

Agency for Healthcare Research and Quality, Data & Surveys

AHRQ data & surveys

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A collection of data at Agency for Healthcare Research and Quality (AHRQ) supporting research that helps people make more informed decisions and improves the quality of health care services. The portal contains U.S.Health Information Knowledgebase (USHIK) and Systematic Review Data Repository (SRDR) and other sources concerning cost, quality, accesibility and evaluation of healthcare and medical insurance.

Biogrid Australia

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BioGrid Australia Limited operates a federated data sharing platform for collaborative translational health and medical research providing a secure infrastructure that advances health research by linking privacy-protected and ethically approved data among a wide network of health collaborators. BioGrid links real-time de-identified health data across institutions, jurisdictions and diseases to assist researchers and clinicians improve their research and clinical outcomes. The web-based infrastructure provides ethical access while protecting both privacy and intellectual property.

Health and Medical Care Archive

HMCA

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The Health and Medical Care Archive (HMCA) is the data archive of the Robert Wood Johnson Foundation (RWJF), the largest philanthropy devoted exclusively to health and health care in the United States. Operated by the Inter-university Consortium for Political and Social Research (ICPSR) at the University of Michigan, HMCA preserves and disseminates data collected by selected research projects funded by the Foundation and facilitates secondary analyses of the data. Our goal is to increase understanding of health and health care in the United States through secondary analysis of RWJF-supported data collections

INDEPTH Data Repository

International Network for the Demographic Evaluation of Populations and Their Health Data Repository

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INDEPTH is a global network of research centres that conduct longitudinal health and demographic evaluation of populations in low- and middle-income countries (LMICs). INDEPTH aims to strengthen global capacity for Health and Demographic Surveillance Systems (HDSSs), and to mount multi-site research to guide health priorities and policies in LMICs, based on up-to-date scientific evidence. The data collected by the INDEPTH Network members constitute a valuable resource of population and health data for LMIC countries. This repository aims to make well documented anonymised longitudinal microdata from these Centres available to data users.

The Health Improvement Network

THIN

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THIN is a medical data collection scheme that collects anonymised patient data from its members through the healthcare software Vision. The UK Primary Care database contains longitudinal patient records for approximately 6% of the UK Population. The anonymised data collection, which goes back to 1994, is nationally representative of the UK population.

45 and Up Study

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More than a quarter of a million people — one in 10 NSW men and women aged over 45 — have been recruited to our 45 and Up Study, the largest ongoing study of healthy ageing in the Southern Hemisphere. The baseline information collected from all of our participants is available in the Study’s Data Book. This information, which researchers use as the basis for their analyses, contains information on key variables such as height, weight, smoking status, family history of disease and levels of physical activity. By following such a large group of people over the long term, we are developing a world-class research resource that can be used to boost our understanding of how Australians are ageing. This will answer important health and quality-of-life questions and help manage and prevent illness through improved knowledge of conditions such as cancer, heart disease, depression, obesity and diabetes.

Public Health Ontario Open Data

PHO

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PHO's data inventory lists all PHO data sets and identifies whether a data set is currently open, in the process of being opened or exempt from being released.

Research Domain Criteria Database

RDoCdb

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!!! >>> merged with https://www.re3data.org/repository/r3d100012653 <<< !!! RDoCdb is an informatics platform for the sharing of human subjects data generated by investigators as part of the NIMH's Research Domain Criteria initiative, and to support this initiative's aims. It also accepts and shares appropriate data related to mental health from other sources.

Cancer in Young People in Canada

CYP-C

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The Cancer in Young People in Canada (CYP-C) surveillance program collects in-depth data concerning risk factors, health outcomes, quality and accessibility of care, and late effects among children and youth with cancer. CYP-C represents a collaboration involving the C17 Council, Canadian Partnerships Against Cancer (CPAC), Public Health Agency of Canada (PHAC), provincial and territorial cancer registries, Statistics Canada and non-governmental organizations.

National Database for Clinical Trials Related to Mental Illness

NDCT

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!!! >>> integrated in https://www.re3data.org/repository/r3d100012653 <<< !!! The National Database for Clinical Trials Related to Mental Illness (NDCT) is an informatics platform for the sharing of human subjects data from all clinical trials funded by the National Institute of Mental Health (NIMH).

Population Services International Dataverse

PSI Dataverse

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PSI is a global health organization dedicated to improving the health of people in the developing world by focusing on serious challenges like a lack of family planning, HIV and AIDS, barriers to maternal health, and the greatest threats to children under five, including malaria, diarrhea, pneumonia and malnutrition. A hallmark of PSI is a commitment to the principle that health services and products are most effective when they are accompanied by robust communications and distribution efforts that help ensure wide acceptance and proper use. PSI works in partnership with local governments, ministries of health and local organizations to create health solutions that are built to last. We use original data to monitor and evaluate our programs, generate consumer insight, estimate the impact of our solutions, and evaluate the health of the markets we work to strengthen.

Data Sharing for Demographic Research

A data archive for demography and population sciences

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Data Sharing for Demographic Research (DSDR) aims to serve the demographic community by archiving, preserving, and and disseminating data relevant for population studies

Prospered Project

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Policy-relevant observational studies for population health equity and responsible development. High-quality statistical information adult and children's health from the UN's Demographic and Health Surveys (DHS) program and UNICEF's Multiple Indicator Cluster Surveys (MICS). These datasets contain longitudinal information dating back to 1995 or 1999 for a series of social policies in up to 193 UN countries. DHS data variables include fertility, family planning and nutritional status for women aged 15-49 and young children, as well as demographic information on household structure, employment, education, wealth, and place of residence. MICS data includes information on nutritional status and child mortality, medical care during the antenatal and postnatal periods, and sibling maternal mortality, among others.

European Centre for Disease Prevention and Control

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ECDC is an EU agency aimed at strengthening Europe's defences against infectious diseases. The core functions cover a wide spectrum of activities: surveillance, epidemic intelligence, response, scientific advice, microbiology, preparedness, public health training, international relations, health communication, and the scientific journal Eurosurveillance. Within the field of its mission, the Centre shall: search for, collect, collate, evaluate and disseminate relevant scientific and technical data; provide scientific opinions and scientific and technical assistance including training; provide timely information to the Commission, the Member States, Community agencies and international organisations active within the field of public health; coordinate the European networking of bodies operating in the fields within the Centre's mission, including networks that emerge from public health activities supported by the Commission and operating the dedicated surveillance networks; exchange information, expertise and best practices, and facilitate the development and implementation of joint actions.

NDAR

National Database for Autism Research

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<<<!!!<<< NDAR is a part of the National Institute of Mental Health Data Archive (NDA) https://www.re3data.org/repository/r3d100012653 >>>!!!>>>

GUDMAP

GenitoUrinary Development Molecular Anatomy Project

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The GenitoUrinary Development Molecular Anatomy Project (GUDMAP) is a consortium of laboratories working to provide the scientific and medical community with tools to facilitate research. The key components are: (1) a molecular atlas of gene expression for the developing organs of the GenitoUrinary (GU) tract; (2) a high resolution molecular anatomy that highlights development of the GU system; (3) mouse strains to facilitate developmental and functional studies within the GU system; (4) tutorials describing GU organogenesis; and (5) rapid access to primary data via the GUDMAP database.

IHEC Data Portal

International Human Epigenome Consortium Data Portal

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The International Human Epigenome Consortium (IHEC) makes available comprehensive sets of reference epigenomes relevant to health and disease. The IHEC Data Portal can be used to view, search and download the data already released by the different IHEC-associated projects.

National Institute of Mental Health Data Archive

NIMH Data Archive

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The National Institute of Mental Health Data Archive (NDA) makes available human subjects data collected from hundreds of research projects across many scientific domains. The NDA provides infrastructure for sharing research data, tools, methods, and analyses enabling collaborative science and discovery. De-identified human subjects data, harmonized to a common standard, are available to qualified researchers. Summary data is available to all. The primary point of entry to the NDA is currently through the National Database for Autism Research (NDAR) website, which serves the autism research community. All NDA repositories can be accessed through this website for data contribution and querying with other scientific communities, allowing for aggregation and secondary analysis of data.

National Archive of Computerized Data on Aging

NACDA

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NACDA acquires and preserves data relevant to gerontological research, processing as needed to promote effective research use, disseminates them to researchers, and facilitates their use. By preserving and making available the largest library of electronic data on aging in the United States, NACDA offers opportunities for secondary analysis on major issues of scientific and policy relevance

German Central Health Study Hub

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The German Central Health Study Hub is a platform that serves two different kinds of users. First, it allows scientists and data holding organizations (data producers) to publish their project characteristics, documents and data related to their research endeavour in a FAIR manner. Obviously, patient-level data cannot be shared publicly, however, metadata describing the patient-level data along with information about data access can be shared via the platform (preservation description information). The other kind of user is a scientist or researcher (data consumer) that likes to find information about past and ongoing studies and is interested in reusing existing patient-level data for their project. To summarize, the platforms connect data providers with data consumers in the domain of clinical, public health and epidemiologic health research to foster reuse. The platform aggregates and harmonizes information already entered in various public repositories such as DRKS, clinicaltrials.gov, WHO ICTRP to provide a holistic view of the German research landscape in the aforementioned research areas. In addition, data stewards actively collect available information from (public) resources such as websites that cannot be automatically integrated. The service started during the COVID-19 pandemic.

Knoema

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Knoema is a knowledge platform. The basic idea is to connect data with analytical and presentation tools. As a result, we end with one uniformed platform for users to access, present and share data-driven content. Within Knoema, we capture most aspects of a typical data use cycle: accessing data from multiple sources, bringing relevant indicators into a common space, visualizing figures, applying analytical functions, creating a set of dashboards, and presenting the outcome.

Population Data BC

PopData

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Population Data BC (PopData) is a multi-university, data and education resource facilitating interdisciplinary research on the determinants of human health, well-being and development. Providing a range of services to researchers and data providers, PopData strives to ensure that researchers have timely access to the data and training they need to address research questions on population health. Research using these data informs policy-making and leads to healthier communities.