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Found 111 result(s)
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Human biomaterial banks (short: biobanks) are collections of human body substances (i.e. blood, DNA, urine or tissue) connected with disease specific information. This allow for research of relations between deseases and underlying (molecular) modifications and paves the way for developing target-oriented therapies ("personalized medicine"). The biobank material arises from samples taken for therapeutical or diagnostic reasons or is extracted in the context of clinical trials. An approval for usage by the patient is always needed prior to any research activities.
The data in the U of M’s Clinical Data Repository comes from the electronic health records (EHRs) of more than 2 million patients seen at 8 hospitals and more than 40 clinics. For each patient, data is available regarding the patient's demographics (age, gender, language, etc.), medical history, problem list, allergies, immunizations, outpatient vitals, diagnoses, procedures, medications, lab tests, visit locations, providers, provider specialties, and more.
The Health Data Research Innovation Gateway (the ‘Gateway’) provides a common entry point to discover and enquire about access to UK health datasets for research and innovation. It provides detailed information about the datasets, which are held by members of the UK Health Data Research Alliance, such as a description, size of the population, and the legal basis for access. The Gateway includes the ability to search for research projects, publications and health data tools, such as those related to COVID-19. New interactive features provide a community forum for researchers to collaborate and connect and the ability to add research projects. The Innovation Gateway does not hold or store any datasets or patient or health data but rather acts as a portal to allow discovery of datasets and to request access to them for health research. A dataset is a collection of related individual pieces of data but in the case of health data, identifiable information (e.g. name or NHS number) is removed and data is de-identified where possible. When you access the Gateway you will not be able to view or extract the data itself. Instead, you will be able to see information that describes what the different datasets are (e.g. where the dataset has come from, a description of the dataset, the time period and the geographical areas the dataset covers).
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The Maelstrom Catalogue provides a user-friendly solution for data discovery. It contains comprehensive information about epidemiological research networks and studies, and the data they have collected. It also provides information about harmonized data generated by these research networks.
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The National Center for Forestry and Grassland Genetic Resources (Forestry and Grassland Repository) consists of a series of in situ and ex situ repositories and ex situ repositories, including 15 in situ repositories, 137 ex situ repositories and 3 facility repositories (attached), all of which are recognized by the Seedling Department of the State Forestry and Grassland Administration or the National Forestry Germplasm Resource Platform to collect and preserve forest, grass, flower, bamboo and rattan germplasm resources, and to establish a big data system through standardization, digitization. The purpose of the Forestry and Grassland Resource Bank is to strengthen the germplasm resources of forests, grasses, flowers, bamboos and rattan. The purpose of the Forestry and Grass Resource Bank is to strengthen the collection and preservation of forestry germplasm resources and open sharing, and to promote sustainable use; the objective is to use ultra-low temperature freezing, genomics, artificial intelligence and other high technology to carry out long-term preservation, accurate identification and in-depth exploration of germplasm resources, and to achieve safe preservation and efficient use of germplasm resources. The Forestry and Grassland Resource Bank undertakes the rendezvous of scientific and technological projects in the forestry germplasm resource category. By building an integrated sharing service platform for germplasm resource production, academia and research, it improves the innovation and exploitation capacity of forestry germplasm resources, supports major national needs in scientific research, ecological construction and economic development, promotes the docking of resources and needs, and facilitates the use of resources and the transformation of results. It realizes information and physical sharing, so that forest germplasm resources can be safely preserved and scientifically utilized.
NIAID’s TB Portals Program is a multi-national collaboration for TB data sharing and analysis to advance TB research. As a global consortium of clinicians, scientists, and IT professionals from 40 sites in 16 countries throughout eastern Europe, Asia, and sub-Saharan Africa, the TB Portals Program is a web-based, open-access repository of multi-domain TB data and tools for its analysis. Researchers can find linked socioeconomic/geographic, clinical, laboratory, radiological, and genomic data from over 7,500 international published TB patient cases with an emphasis on drug-resistant tuberculosis.
DaSCH is the trusted platform and partner for open research data in the Humanities. DaSCH develops and operates a FAIR long-term repository and a generic virtual research environment for open research data in the humanities in Switzerland. We provide long-term direct access to the data, enable their continuous editing and allow for precise citation of single objects within a dataset. We ensure interoperability with tools used by the Humanities and Cultural Sciences communities and foster the use of standards. The development of our platform happens in close cooperation with these communities. We provide training and advice in the area of research data management, promote open data and the use of standards. DaSCH is the coordinating institution and representative of Switzerland in the European Research Infrastructure Consortium ‘Digital Research Infrastructure for the Arts and Humanities’ (DARIAH ERIC). Within this mandate, we actively engage in community building within Switzerland and abroad. DaSCH cooperates with national and international organizations and initiatives in order to provide services that are fit for purpose within the broader Swiss open research data landscape and that are coordinated with other institutions such as FORS. We base our actions on the values reliability, flexibility, appreciation, curiosity, and persistence. Furthermore, DARIAH’s activities in Switzerland are coordinated by DaSCH and DaSCH is acting as DARIAH-CH Coordination Office.
The Digital Archaeological Record (tDAR) is an international digital repository for the digital records of archaeological investigations. tDAR’s use, development, and maintenance are governed by Digital Antiquity, an organization dedicated to ensuring the long-term preservation of irreplaceable archaeological data and to broadening the access to these data.
ARCHE (A Resource Centre for the HumanitiEs) is a service aimed at offering stable and persistent hosting as well as dissemination of digital research data and resources for the Austrian humanities community. ARCHE welcomes data from all humanities fields. ARCHE is the successor of the Language Resources Portal (LRP) and acts as Austria’s connection point to the European network of CLARIN Centres for language resources.
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DABAR (Digital Academic Archives and Repositories) is the key component of the Croatian e-infrastructure’s data layer. It provides technological solutions that facilitate maintenance of higher education and science institutions' digital assets, i.e., various digital objects produced by the institutions and their employees.
The PAIN Repository is a recently funded NIH initiative, which has two components: an archive for already collected imaging data (Archived Repository), and a repository for structural and functional brain images and metadata acquired prospectively using standardized acquisition parameters (Standardized Repository) in healthy control subjects and patients with different types of chronic pain. The PAIN Repository provides the infrastructure for storage of standardized resting state functional, diffusion tensor imaging and structural brain imaging data and associated biological, physiological and behavioral metadata from multiple scanning sites, and provides tools to facilitate analysis of the resulting comprehensive data sets.
The Magnetics Information Consortium (MagIC) improves research capacity in the Earth and Ocean sciences by maintaining an open community digital data archive for rock magnetic, geomagnetic, archeomagnetic (archaeomagnetic) and paleomagnetic (palaeomagnetic) data. Different parts of the website allow users access to archive, search, visualize, and download these data. MagIC supports the international rock magnetism, geomagnetism, archeomagnetism (archaeomagnetism), and paleomagnetism (palaeomagnetism) research and endeavors to bring data out of private archives, making them accessible to all and (re-)useable for new, creative, collaborative scientific and educational activities. The data in MagIC is used for many types of studies including tectonic plate reconstructions, geomagnetic field models, paleomagnetic field reversal studies, magnetohydrodynamical studies of the Earth's core, magnetostratigraphy, and archeology. MagIC is a domain-specific data repository and directed by PIs who are both producers and consumers of rock, geo, and paleomagnetic data. Funded by NSF since 2003, MagIC forms a major part of https://earthref.org which integrates four independent cyber-initiatives rooted in various parts of the Earth, Ocean and Life sciences and education.
The Index to Marine and Lacustrine Geological Samples is a tool to help scientists locate and obtain geologic material from sea floor and lakebed cores, grabs, and dredges archived by participating institutions around the world. Data and images related to the samples are prepared and contributed by the institutions for access via the IMLGS and long-term archive at NGDC. Before proposing research on any sample, please contact the curator for sample condition and availability. A consortium of Curators guides the IMLGS, maintained on behalf of the group by NGDC, since 1977.
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The Freshwater Research and Environmental Database is the central data repository for IGB. It is where we store and share environmental data from observations of lakes, rivers, peatlands and other freshwater habitats. In FRED you can find continuous data collected over several decades from our long-term research programme at the lakes Müggelsee, Stechlinsee, Arendsee and the river Spree, as well as environmental data derived from short-term projects in aquatic ecosystems. All data include detailed metadata descriptions in text form to allow reuse of the data. The database can be searched for a range of aspects, such as ecosystem types or abiotic and biotic variables. Data use, where not freely accessible, shall be granted after consulting with the contact person given in the database, and is subject to the IGB Data Policy.
Copernicus is a European system for monitoring the Earth. Copernicus consists of a complex set of systems which collect data from multiple sources: earth observation satellites and in situ sensors such as ground stations, airborne and sea-borne sensors. It processes these data and provides users with reliable and up-to-date information through a set of services related to environmental and security issues. The services address six thematic areas: land monitoring, marine monitoring, atmosphere monitoring, climate change, emergency management and security. The main users of Copernicus services are policymakers and public authorities who need the information to develop environmental legislation and policies or to take critical decisions in the event of an emergency, such as a natural disaster or a humanitarian crisis. Based on the Copernicus services and on the data collected through the Sentinels and the contributing missions , many value-added services can be tailored to specific public or commercial needs, resulting in new business opportunities. In fact, several economic studies have already demonstrated a huge potential for job creation, innovation and growth.
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The Norwegian Marine Data Centre (NMD) at the Institute of Marine Research was established as a national data centre dedicated to the professional processing and long-term storage of marine environmental and fisheries data and production of data products. The Institute of Marine Research continuously collects large amounts of data from all Norwegian seas. Data are collected using vessels, observation buoys, manual measurements, gliders – amongst others. NMD maintains the largest collection of marine environmental and fisheries data in Norway.
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Movebank is an online platform that helps researchers and wildlife managers worldwide manage, share, analyze and archive animal movement data. Movebank's database is designed for locations of individual animals over time, commonly referred to as tracking data, and measurements collected by other sensors attached to animals, as well as information about related animals, tags and deployments. The platform supports public and controlled-access sharing, and offers services for working with data from initial collection through publication, discovery and re-use.
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Created and managed by the Library, DataSpace@HKUST is the data repository and workspace service for HKUST research community. Faculty members and research postgraduate students can use the platform to store, share, organize, preserve and publish research data. It is built on Dataverse, an open source web application developed at Harvard’s Institute for Quantitative Social Science. Using Dataverse architecture, the repository hosts multiple "dataverses". Each dataverse contains datasets; while each dataset may contain multiple data files and the corresponding descriptive metadata.
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The BonaRes Repository stores, manage and publishes soil and agricultural research data from research projects, agricultural long-term field experiments and soil profiles which contribute significantly to the analysis of changes of soil and soil functions over the long term. Research data are described by the metadata following the BonaRes Metadata Schema (DOI: 10.20387/bonares-5pgg-8yrp) which combines international recognized standards for the description of geospatial data (INSPIRE Directive) and research data (DataCite 4.0). Metadata includes AGROVOC keywords. Within the BonaRes Repository research data is provided for free reuse under the CC License and can be discovered by advanced text and map search via a number of criteria.
BSRN is a project of the Radiation Panel (now the Data and Assessment Panel) from the Global Energy and Water Cycle Experiment (GEWEX) under the umbrella of the World Climate Research Programme (WCRP). It is the global baseline network for surface radiation for the Global limate Observing System (GCOS), contributing to the Global Atmospheric Watch (GAW), and forming a ooperative network with the Network for the Detection of Atmospheric Composition Change NDACC).
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Research Data Finder is QUT’s discovery service for research data created or collected by QUT researchers. Designed to promote the visibility of QUT research datasets, Research Data Finder provides descriptions about shareable, reusable datasets available via open or mediated access.
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Datatang is a professional data pre-processing company. We are engaged in data collecting, annotating, and customizing to meet our clients’ various needs. We assist our clients from university research labs and company R&D departments to waive trivial yet necessary data processing procedure and make their approach to the highest-value data in a more efficient way.
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The RDSC provides researchers access to selected microdata from the Bundesbank's data records for independent and non-commercial scientific research projects on basis of the legal requirements. The RDSC is the mediator between the Bundesbank’s wide range of different micro data in various departments and – on the other side – researchers or analysts. In connection with this, the RDSC is responsible for the methodological improvement, the access of and the comprehensive documentation of the high-quality microdata. It also offers additional consultancy and support services to existing and prospective data users and satisfies data protection requirements. English version see: https://www.bundesbank.de/en/bundesbank/research/rdsc/research-data-and-service-centre-rdsc--869492
The National Sleep Research Resource (NSRR) is an NHLBI-supported repository for sharing large amounts of sleep data (polysomnography, actigraphy and questionnaire-based) from multiple cohorts, clinical trials, and other data sources. Launched in April 2014, the mission of the NSRR is to advance sleep and circadian science by supporting secondary data analysis, algorithmic development, and signal processing through the sharing of high-quality data sets.