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Found 19 result(s)
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Human biomaterial banks (short: biobanks) are collections of human body substances (i.e. blood, DNA, urine or tissue) connected with disease specific information. This allow for research of relations between deseases and underlying (molecular) modifications and paves the way for developing target-oriented therapies ("personalized medicine"). The biobank material arises from samples taken for therapeutical or diagnostic reasons or is extracted in the context of clinical trials. An approval for usage by the patient is always needed prior to any research activities.
The nationally recognized National Cancer Database (NCDB)—jointly sponsored by the American College of Surgeons and the American Cancer Society—is a clinical oncology database sourced from hospital registry data that are collected in more than 1,500 Commission on Cancer (CoC)-accredited facilities. NCDB data are used to analyze and track patients with malignant neoplastic diseases, their treatments, and outcomes. Data represent more than 70 percent of newly diagnosed cancer cases nationwide and more than 34 million historical records.
The PAIN Repository is a recently funded NIH initiative, which has two components: an archive for already collected imaging data (Archived Repository), and a repository for structural and functional brain images and metadata acquired prospectively using standardized acquisition parameters (Standardized Repository) in healthy control subjects and patients with different types of chronic pain. The PAIN Repository provides the infrastructure for storage of standardized resting state functional, diffusion tensor imaging and structural brain imaging data and associated biological, physiological and behavioral metadata from multiple scanning sites, and provides tools to facilitate analysis of the resulting comprehensive data sets.
ResearchWorks Archive is the University of Washington’s digital repository (also known as “institutional repository”) for disseminating and preserving scholarly work. ResearchWorks Archive can accept any digital file format or content (examples include numerical datasets, photographs and diagrams, working papers, technical reports, pre-prints and post-prints of published articles).
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The arctic data archive system (ADS) collects observation data and modeling products obtained by various Japanese research projects and gives researchers to access the results. By centrally managing a wide variety of Arctic observation data, we promote the use of data across multiple disciplines. Researchers use these integrated databases to clarify the mechanisms of environmental change in the atmosphere, ocean, land-surface and cryosphere. That ADS will be provide an opportunity of collaboration between modelers and field scientists, can be expected.
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Database of forestry research installations in Canada with a focus on tree-level datasets (dendrometry, physical properties, dendrochronology, phenology, etc.).
The WashU Research Data repository accepts any publishable research data set, including textual, tabular, geospatial, imagery, computer code, or 3D data files, from researchers affiliated with Washington University in St. Louis. Datasets include metadata and are curated and assigned a DOI to align with FAIR data principles.
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Rodare is the institutional research data repository at HZDR (Helmholtz-Zentrum Dresden-Rossendorf). Rodare allows HZDR researchers to upload their research software and data and enrich those with metadata to make them findable, accessible, interoperable and retrievable (FAIR). By publishing all associated research software and data via Rodare research reproducibility can be improved. Uploads receive a Digital Object Identfier (DOI) and can be harvested via a OAI-PMH interface.
The range of CIRAD's research has given rise to numerous datasets and databases associating various types of data: primary (collected), secondary (analysed, aggregated, used for scientific articles, etc), qualitative and quantitative. These "collections" of research data are used for comparisons, to study processes and analyse change. They include: genetics and genomics data, data generated by trials and measurements (using laboratory instruments), data generated by modelling (interpolations, predictive models), long-term observation data (remote sensing, observatories, etc), data from surveys, cohorts, interviews with players.
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Research Data Unipd is a data archive and supports research produced by the members of the University of Padova. The service aims to facilitate data discovery, data sharing, and reuse, as required by funding institutions (eg. European Commission). Datasets published in the archive have a set of metadata that ensure proper description and discoverability.
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Borealis, the Canadian Dataverse Repository, is a bilingual, multidisciplinary, secure, Canadian research data repository, supported by academic libraries and research institutions across Canada. Borealis supports open discovery, management, sharing, and preservation of Canadian research data. Borealis is available to researchers who are affiliated with a participating Canadian university or research organization and their collaborators. Borealis is a shared service provided in partnership with Canadian regional academic library consortia, institutions, research organizations, and the Digital Research Alliance of Canada, with technical infrastructure hosted by Scholars Portal and the University of Toronto Libraries.
The Avian Knowledge Network (AKN) is an international network of governmental and non-governmental institutions and individuals linking avian conservation, monitoring and science through efficient data management and coordinated development of useful solutions using best-science practices based on the data.
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The National Forest Inventory (NFI) is a collaborative effort involving federal, provincial and territorial government agencies. They monitor a network of twenty thousand sampling points across Canada on an ongoing basis to provide information on the state of Canada's forests and a continuous record of forest change. They provide data and products to forest science researchers, forest policy decision-makers and interested stakeholders.
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FinBIF is an integral part of the global biodiversity informatics framework, dedicated to managing species information. Its mission encompasses a wide array of services, including the generation of digital data through various processes, as well as the sourcing, collation, integration, and distribution of existing digital data. Key initiatives under FinBIF include the digitization of collections, the development of data systems for collections Kotka (https://biss.pensoft.net/article/37179/) and observations (https://biss.pensoft.net/article/39150/), and the establishment of a national DNA barcode reference library. FinBIF manages data types such as verbal species descriptions (which include drawings, pictures, and other media types), biological taxonomy, scientific collection specimens, opportunistic systematic and event-based observations, and DNA barcodes. It employs a unified IT architecture to manage data flows, delivers services through a single online portal, fosters collaboration under a cohesive umbrella concept, and articulates development visions under a unified brand. The portal Laji.fi serves as the entry point to this harmonized open data ecosystem. FinBIF's portal is accessible in Finnish, Swedish, and English. Data intended for restricted use are made available to authorities through a separate portal, while open data are also shared with international systems, such as GBIF.
BOARD (Bicocca Open Archive Research Data) is the institutional data repository of the University of Milano-Bicocca. BOARD is an open, free-to-use research data repository, which enables members of University of Milano-Bicocca to make their research data publicly available. By depositing their research data in BOARD researchers can: - Make their research data citable - Share their data privately or publicly - Ensure long-term storage for their data - Keep access to all versions - Link their article to their data
SimTK is a free project-hosting platform for the biomedical computation community that enables researchers to easily share their software, data, and models and provides the infrastructure so they can support and grow a community around their projects. It has over 126.656 members, hosts 1.648 projects from researchers around the world, and has had more than 2.095.783 files downloaded from it. Individuals have created SimTK projects to meet publisher and funding agencies’ software and data sharing requirements, run scientific challenges, create a collection of their community’s resources, and much more.
The Stanford Digital Repository (SDR) is Stanford Libraries' digital preservation system. The core repository provides “back-office” preservation services – data replication, auditing, media migration, and retrieval -- in a secure, sustainable, scalable stewardship environment. Scholars and researchers across disciplines at Stanford use SDR repository services to provide ongoing, persistent, reliable access to their research outputs.