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The NF Data Portal is designed to help openly explore and share NF datasets, analysis tools, resources, and publications related to neurofibromatosis. Anyone can join the NF Open Science Initiative (NF-OSI) to participate! We welcome contributions from anyone in the neurofibromatosis and schwannomatosis research community, such as original datasets generated by the community or analyses of data from the NF Data Portal.
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DRO is Deakin University's research repository, providing digital curation by describing and preserving the University's research output and enabling worldwide discovery.
The ISRCTN registry is a primary clinical trial registry recognised by WHO and ICMJE that accepts all clinical research studies (whether proposed, ongoing or completed), providing content validation and curation and the unique identification number necessary for publication. All study records in the database are freely accessible and searchable. ISRCTN supports transparency in clinical research, helps reduce selective reporting of results and ensures an unbiased and complete evidence base. ISRCTN accepts all studies involving human subjects or populations with outcome measures assessing effects on human health and well-being, including studies in healthcare, social care, education, workplace safety and economic development.
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Etsin is a research data finder that contains descriptive information – that is, metadata – on research datasets. In the service you can search and find data from various fields of research. A researcher, research group or organisation can use Etsin to publish information on their datasets and offer them for wider use. The metadata contained in Etsin makes it easy for anyone to discover the datasets. Etsin assigns a permanent URN identifier to datasets, making it possible to link to the dataset and gather merit through its publication and use. The metadata enables users to search for datasets and evaluate the potential for reuse. Etsin includes a description of the dataset, keywords and various dataset identifiers. The dataset information includes, for example, its subject, language, author, owner and how it is licensed for reuse. Good description of data plays an important role in its discoverability and visibility. Etsin encourages comprehensive descriptions by adapting a common set of discipline independent metadata fields and by making it easy to enter metadata. Etsin only collects metadata on datasets, not the data themselves. Anyone may browse and read the metadata. Etsin can be used with a browser or through an open interface (API). The service is discipline independent and free to use. Etsin is a service provided by the Ministry of Education and Culture to actors in the Finnish research system. The service is produced by CSC – IT Center for Science (CSC). Customer service contacts and feedback is available through servicedesk@csc.fi. The service maintenance window is on the fourth Monday of every month between 4 and 6 PM (EET). During that time, the service will be out of use.